As we’re coming to the end of 2014, it’s exciting to see an increase
in the amount of people expressing an interest in learning more about LDN when
looking at their treatment options.
For those of us who live with a chronic sickness we are
fortunate to have the internet available to us where we can access a wealth of
information about our diseases and become better educated about the disease
process.
LDN is very much a patient driven medication. Some might say
‘evidence based’. Some who have had such a success using
LDN have teamed up with others and initiated various groups in social media and
forums in the hopes that they too can help others with getting them to feel
well again. These groups are terrific platforms for patients to exchange
experiences, learn from each other while offering much needed support.
While there are numerous reliable sites to visit on the
internet to obtain factual information about our diseases, finding reliable
information about LDN which is an off label therapy that uses the biotherapy
approach to medicine can be tricky. To help avoid falling into the pitfalls of
internet mythology, we need more reliable research to be done (and published) to
be available to all.
Research
funds are critical to moving forward. Unfortunately, most organizations could not
care less about translational research or dissecting the best possible
treatment regimens. In today’s austerity, NIH’s funding has been slashed
which unfortunately means so has the money for research into LDN.
So what can we do to help get the much needed answers to all
the questions we continue to raise? I
contacted Dr McLaughlin asking if there was a simple way for people to be able
to help by donating. Please see her response:-
“Dr. Zagon and I have worked on this topic for more
than 25 years and were excited when we made the original observations. We
always wanted to discover something that would make a difference to people and
are very pleased that information on LDN has been shared among those that need
it. However, we are continuing to study how it works, whether we can
detect defects on the endogenous pathways that LDN targets, and how best to
deliver LDN for long-term treatment. Your funds will go directly to
supporting this type of research. We believe that understanding the mechanisms
will help with understanding the etiology of many autoimmune, central nervous
system disorders and various cancers. Thanks to anyone who can help!”
I am sharing this with the hope you too can lend some
support – even if it’s only $1. Here’s the quick and easy link to donate that
has been set up by Penn State:-
